Manara - Qatar Research Repository
Browse
1/1
3 files

Willingness to participate in genome testing: a survey of public attitudes from Qatar

Version 2 2024-05-15, 12:54
Version 1 2022-11-22, 21:16
journal contribution
posted on 2024-05-15, 12:54 authored by Hanan F. Abdul Rahim, Said I. Ismail, Amel Hassan, Tasnim Fadl, Salma M. Khaled, Bethany Shockley, Catherine Nasrallah, Yara Qutteina, Engi Elmaghraby, Heba Yasin, Dima Darwish, Khalid A. Fakhro, Radja Badji, Wadha Al-Muftah, Nahla Afifi, Asmaa Althani

Genomics has the potential to revolutionize medical approaches to disease prevention, diagnosis, and treatment, but it does not come without challenges. The success of a national population-based genome program, like the Qatar Genome Program (QGP), depends on the willingness of citizens to donate samples and take up genomic testing services. This study explores public attitudes of the Qatari population toward genetic testing and toward participating in the QGP. A representative sample of 837 adult Qataris was surveyed in May 2016. Approximately 71% of respondents surveyed reported that they were willing to participate in the activities of the QGP. Willingness to participate was significantly associated with basic literacy in genetics, a family history of genetic diseases, and previous experience with genetic testing through premarital screening. Respondents cited the desire to know more about their health status as the principle motivation for participating, while lack of time and information were reported as the most important barriers. With QGP plans to ramp up the scale of its national operation toward more integration into clinical care settings, it is critical to understand public attitudes and their determinants. The results demonstrate public support but also identify the need for more education and individual counseling that not only provide information on the process, challenges, and benefits of genomic testing, but that also address concerns about information security.

Other Information

Published in: Journal of Human Genetics
License: https://creativecommons.org/licenses/by/4.0
See article on publisher's website: http://dx.doi.org/10.1038/s10038-020-0806-y

Additional institutions affiliated with: Weill Cornell Medicine - Qatar

Funding

Open Access funding provided by the Qatar National Library.

History

Language

  • English

Publisher

Springer Nature

Publication Year

  • 2020

License statement

This Item is licensed under the Creative Commons Attribution 4.0 International License.

Institution affiliated with

  • Hamad Bin Khalifa University
  • College of Health and Life Sciences - HBKU
  • Qatar University
  • Social and Economic Survey Research Institute - QU
  • Qatar University Health - QU
  • College of Health Sciences - QU HEALTH
  • Qatar Science & Technology Park
  • Qatar Genome Programme (2015-2024)
  • Qatar Biobank (2012-2024)
  • Sidra Medicine

Geographic coverage

Qatar